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  I am 37 years old but had my spleen removed when I was 19. It was very enlarged due to hundreds of tumors. I had multiple surgeries to remove tumors that I later found out was caused by birth control. I was completely healthy before this surgery but after my health has completely depleted. I had an open surgery not laparoscopic. I have an many really bad infections and my white cells and platelets have been super high since my surgery, which is pretty normal. But I have had so many other things come up since then that don't seem to match others with no spleen. I go thru periods where I give up on my health b/c it is so frustrating. My doctors struggle to help me. I have seen all sorts of specialists and seem to always come to a dead end. My doctor has sent me to an oncology/hematology doctor, who then sent me to a rheumatologist, who then sent me to a immunologist, who sent me to a cardiologist, and so on. I have spent way to much money trying to figure out what was going on with me and I am so tired of it. I have had so much testing and at points I feel like it is in my head until I get lab results back that tell a different story. Many of my positive lab results line up with autoimmune issues but I have not gotten a diagnosis. My ANA is always positive, my cardiolipin antibodies are always positive, my c-reactive protein is positive, but I am negative for many of the lupus type tests. Besides a medication that I take for reaccuring UTI's the only other medicine I take is a pill that helps with extreme dizziness I deal with. I have a lot of trouble getting over infections and my platlets are so high that mulitple doctors keep requesting I get bone marrow biopsies. I have had two, which were both negative. Some days I want to give up. I don't know where to turn but I feel as though this is all connected in some way. I literally had no health issues until my splenectomy and now I am a mess. I am tired of being sick and feeling awful. I have been to University of Chicago and they just keep sending me to different specialist. I stopped going b/c I couldn't afford it anymore. I feel like I am back to square one. I have had so many random things come up over the years that just don't make sense. :(

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