Back to the Panorama programme
, the following is from a MS sufferer......
It is very scary.
These assessments do not quantify the things people have to do during a day.
I can use a computer for some of the day so therefore I will not get points for many things.
Yet I cant stay awake (even with medication) for very long. My balance is shot to pieces and I fall all the time yet because I can technically walk (even in mega pain) with a stick or having someone push me in a wheelchair that will not be seen as a need under the new guidelines possibly proposed.
I know no one knows exactly what will go on with the conversion to PIP from DLA but I think a lot of us can second guess it with the Incapacity benefit over to ESA.
I belong to a really good website who gives out the current info on these things -
http://www.benefitsandwork.co.uk/
I am very very stressed over it and terrified that my mobility car will be taken away. I need it to get it around. Yes its easy for people to say well just get a little run around but its not as simple as that. Getting a wheelchair in and out and also for me it's the height of the vehicle so I don't have a huge drop to get in and a huge climb to get out again.
I am disabled - I am not able to work but I do give what time I can to charity and I know that the work I do do for the MS Society and other charities is worth tons more to the country than the amount I get paid in incapacity and disability living allowance. Why cant I work --- extreme fatigue, constant pain, blurry vision, other things not to do with MS too but mainly all MS related. Ive been into town today for 25 minutes and that will knock me out for the weekend. I cant sustain anything and I get terrible brain fuzz too. The constant worry of whether I will be able to move when I wake up because my body decides not to wake but my brain does.
I am terrified of these new schemes and how they could destruct me and my life. I am not living a cosy life. I do not go on holidays or drink or smoke. I have 2 children both with issues of their own. My poor husband is trying to work in-between looking after us.
I feel that we (disabled people) have been an easy target for them as we have no choice. There are other areas of the benefit system that should be dealt with and aren't.
OK not going to save loads and loads of money but each person on a certain benefit gets £10 christmas bonus. WHY>>>>>> Many normal working people do not get a bonus at Christmas so why should someone on benefit get an extra £10. Not only this but a letter is sent to every person telling them they are going to get this £10 extra. How much does it really cost to give each person this bonus. I am thinking its quite a bit.
Not the hugest money saver but OMG it's a long way without hurting people who need the benefits.
Rant over. (ish)
You got me just after I woke up so a bit perky ...........
The bit about the Christmas Bonus letter struck a chord, I have often wondered how much it cost to send them out in comparison to the £10 benefit.
