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    People of all kinds of abilities and needs and aspirations deserve autonomy, a life and control over it. ILF is often the only means of control a person has over their own life and support. Unless there are genuine plans to replace it with something better - not necessarily more money, it isn't as much about the amount as about the fact that it goes to the person direct to spend on the support they choose - it is outrageous and cruel to withdraw it. Even with ILF and other safety nets it is often the case that people with disabilities have to take what they can get in terms of support. My own personal nightmare is being immobile and having to tolerate being pulled about, washed, having personal care from someone who smells of stale smoke or B.O., yaps about pap and expects me to listen, and behaves as if they own the place. I will always remember being in hospital after having one of our babies - fully able bodied and sound of mind, I was sitting up in bed and a nurse charged into my room and slapped me about the face with a cold wet flannel. I believe she was trying to wash me. I was able to tell her in no uncertain terms what I expected her to do with the flannel - but if I had been vulnerable, immobile and dependent, less in touch, I would have been at her mercy. There was no respect, thought, kindness or care. She was not unusual.

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