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Thank you to all of you - you can't know how much your support is meaning to me. So very many people have shared their horrific stories now, it has become clear that this appalling service cannot go unchallenged. I think the comments about age are accurate, although some have told me about other wholly unacceptable and dangerous practices involving younger people and children - I don't think it is as much about age as about simple lack of care and respect and an "organisation" that does not have any control over itself or the people working in it. It isn't all about money, it is about the right people being led by the right leaders doing the right things - and that does not rely just on money.
There have been some positive things as well, and I will continue to blog and tell you about those as well: yesterday an absolutely lovely nurse called Tom (he has morphed into Kind Nurse#2!) spontaneously introduced himself to me, smiled, and asked how I was (blimey) and even though he was not "working at this end" he went and found someone who was. I was almost speechless with gratitude. And two fabulous tiny Filipina nurses made my Mother as comfortable as they could, and I could hear them talking to her behind the curtains even though she is still unresponsive. Just as it should be done - I can't tell you what that felt like.
It does not, however, blind me to the fact that I still do not trust them and I think they are the exception. Those first 3 days were Hell, and I have absolutely no confidence that they are not repeated overnight or when I am not there. The charts were still incorrectly competed and shabby, signatures were not being applied as I had asked (and incidentally as they should be) so there was still little accountability, some of the nurses were clearly not up to it. BUT I will continue to blog, and will continue to pressure, and will let you all know how things are. The most important thing immediately is for my Mother to have all the nursing care she needs. The next biggie is to have a conversation with someone at the PCT about this sorry experience. Watch this space. Days 4&5 are in draft and soon to be published.
And thank you with all my heart.